Resuming Treatment; "The Mystery Disease"
Dr. Scott told me Friday that the biopsy showed that "The Mystery Disease" is Erythema Nodosum, the cause of which will have to remain unknown as the Dr. Jeff noted that the atypical TB test was negative and there was no evidence of the fungi he was looking for.
Dr. Scott also said there is no documented cases of Erythema Nodosum being connected to the PEGIntron or Ribivarin. So, I am to resume that treatement beginning Sunday, which will have left me off of treaatment for a mere 10 days. I will do my Neupogen shot this afternoon.
As for the Erythema Nodosum: I've been put on a regime of Prednezone, which I started today. I could have also started the Ribivarin today, but I thought it would be wise to give my body a chance to adjust to the Prednezone. In the beginning -- that is, Week 1 -- I started the Ribivarin and PEGIntron on the same day, which makes it easier for me to track and develop the routine.
So, folks, there you have it: All the very latest on Buzz's Hep C journey.
Thanks for your prayers and words of encouragement.
Grace and peace ...
Dr. Scott also said there is no documented cases of Erythema Nodosum being connected to the PEGIntron or Ribivarin. So, I am to resume that treatement beginning Sunday, which will have left me off of treaatment for a mere 10 days. I will do my Neupogen shot this afternoon.
As for the Erythema Nodosum: I've been put on a regime of Prednezone, which I started today. I could have also started the Ribivarin today, but I thought it would be wise to give my body a chance to adjust to the Prednezone. In the beginning -- that is, Week 1 -- I started the Ribivarin and PEGIntron on the same day, which makes it easier for me to track and develop the routine.
So, folks, there you have it: All the very latest on Buzz's Hep C journey.
Thanks for your prayers and words of encouragement.
Grace and peace ...
posted by Pastor Buzz at 9:46 AM
4 Comments:
I feel odd and as if I should apologize for being so nosey, but I am rather much interested in your tales of the mystery disease. I hope the prednisone helps - maybe a "beware" is in order as prednisone + riba can really get the rage going! My husband was on prednisone as an immune suppressant anyhow and then started a corticosteriod (same med) skin cream which helped a lot. I am curious as to the ID doctor's idea of what caused the Erythema Nodosum; is the theory bacterial, allergic reaction or still a big mystery? Anyhow, I am very happy you are back on treatment (that doesn't sound quite right, but you know what I mean!) and I hope your legs heal up in a hurry. Prednisone is widely known as the "miracle drug" let's hope it lives up to its rep!
My best to you,
Kerry Grace
I'm here because I started out searching for lyrics to a Bob Bennett song... then it turned into a blog hop - and I found yours. My wife and I have been exploring the neverending world of alternative medicines. If anything, we're the skeptics who are always surprised when something actually works. Prayers from a stranger in a strange place are going up for you tonight.
John C.
Kerry:
After three days on the prednisone (sic?), my legs seem to be looking better and not swelling as much. I, too, was worried about the Pred-Ribirage effect, but this far I've only felt jacked up. Caused a problem last night as I think it combined to increase the insomnia effect of treatment.
No, I don't think you're nosey and there is no need to apologize. The reason we Hep C bloggers share these things is in the hope that we can help someone else, and that someone else can help us.:)
I was warned by the Dr. Jeff, the infectious disease doc, that "we might not ever find the cause." I understood that and, after five years of dealing with Hep C, have come to accept that medicine is as much an art as it is a science ... some would even say moreso.
Believe me, I understand what you mean when you says "happy you are back on treatment." I was OK either way, resuming or not resuming; however, to come 36 weeks and then having to stop left me a little blue at times.
Grace and peace to you,
Pastor buzz
John C:
OK, which Bob Bennett song are you looking for? I love his storytelling style and am especially fond of "Man of the Tombs." That song really speaks.
Not doing any alternatives, but believe me when I was faced with Hep C I checked them out. Decided to stick with the unconventional-conventional treatment of PEGIntron-Ribivarin combo. At this point in the game, it's the standard.
Thanks so much for the prayers. You won't believe what the community of faith means to me.
Grace and peace ...
Pastor Buzz
PS
If you are into contemporary Christian music, check out the Web site connected to this blog: the Buzz Trexler Experience at www.pub.nxs.net/buzz-trexler
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